Inexpensive DNA Health Reports: Recommended by Your DNA Guide
DNA health reports are becoming a more common option for those who test their DNA for family history. Should you order a DNA health report? Here are the ones Diahan Southard recommends most. Her top pick is inexpensive, available to all testers, and promises confidentiality for your genetic data.
DNA Health Reports May Have Saved a Life
At Rootstech 2017 I was sitting at my booth answering questions and talking with many of you about your experience with genetic genealogy. A woman came up to the booth and exclaimed, “You saved my son’s life!”
She went on to explain that she had come across my booth at a previous RootsTech and engaged me in a discussion about using this kind of genetic genealogy test to find out more about a person’s health. I explained that while the focus of these genetic genealogy companies is to further our ancestral research, the DNA that they test does contain some health information. In fact, 23andMe used to offer a full health report as part of their service, but the FDA decided they better regulate that sort of thing, and put the kibosh on it. I told her that while 23andMe is slowly edging back into that arena, you can find out some interesting personal health information today, using the results from any of your genetic genealogy testing company.
How to Get DNA Health Reports
1. Download your results. The first step is to download your raw DNA data from wherever you were tested. Just as Lisa Louise Cooke is always encouraging us to be the owners of our own family tree data, we should be the owners of our own genetic data, too. Save a copy of your raw data to your computer. You can find instructions here on my website.
2. Choose a DNA health report provider and upload your DNA. A growing number of companies offer these reports. Within the genealogy industry, 23andMe sells them and recently Family Tree DNA began offering them to existing customers (more on that coming soon).
But the DNA health report provider I recommend the most is Promethease.com. Their service is available to anyone with a DNA sample–you don’t need to test with any specific company. It’s easy and inexpensive: just $5. This report will tell you about various aspects of your health, including your predisposition to certain diseases and ailments, as well as your likely response or sensitivity to certain drugs. And the site promises confidentiality and impartiality, which are crucial in this age. The Privacy statement reassures users, “At no time is your DNA data shared – or sold – to any external party, period. We also do not sell any products like vitamins or supplements.”
Editor’s note: the following paragraph was updated on January 3, 2018: Promethease now offers the option to keep your raw DNA on the site and obtain updated health reports for free at any time. Click here to read more about these options. An email sent to Promethease customers on January 3, 2018 explains, “We added this infrastructure so we could use de-identified stored data to better assess the accuracy of the raw data produced by different companies, platforms and technologies. This will also allow us to provide the best, independent assessment of true vs. false data in future Promethease reports and add new features.” The email also reminded users that updated reports are valuable because the genetic database that fuels the reports “doubles almost every year, and Promethease’s interface is always improving to enable better searching, filtering and exporting options.”
Here’s a screenshot of part of a sample report:
If you would like to read more about Promethease, I suggest reading over the ISOGG wiki page, paying special attention to blog posts by legal and genetic genealogy experts. There is also a Facebook group to ask and answer questions about Promethease.
One more option for DNA health tests that I want to bring to your attention: Livewello. At Livewello you can combine your own personal exploration of your genetics with the tracking of your family’s health. Livewello offers resources about these ailments and predispositions, as well as support groups and chat rooms for you to explore and ask questions. It does have a fee of $19.95 to join, and some of the feature reports do require a monthly subscription fee.
3. Remember that DNA health reports are in their infancy. It is critical to remember that research hasn’t even begun to scratch the surface of the complex way our genetics interact with other factors in order to make our bodies work. So whatever you see on these kinds of reports, take it for what it is: just information, not some kind of crystal ball. If you see something concerning, you may want to consider talking to a genetic counselor.
This woman at my booth found out some interesting information on Promethease, then consulted the professionals already involved in her son’s care, ultimately changing the course of his treatment, and she believes, saved his life.
As more and more people get genetic testing completed, more and more tools are becoming available to track your personal health history. Whatever you decided to do, please remember that your raw data contains your own personal information that does identify you uniquely from anyone else on the planet. While you shouldn’t be afraid to try new tools and explore your personal genomics, it is very important to read the privacy information of each company carefully to be sure you know what you are consenting to when you are uploading your data. Most companies are fastidious about privacy, but many are also involved in research endeavors, including pharmaceuticals, so please be aware before you upload.
As the genealogists in the family, we are the keepers of many important truths and documents, and certainly, that includes our important health information.
Your DNA is Part of Your Story
Watch this free webinar with Your DNA Guide Diahan Southard to learn more about the role your DNA plays in your story. Get inspired, get informed–and get digging into your DNA! Click on the video below to watch it now.
Fire, Flood or Earthquake? 5 Tips for Researching Disasters in Your Family History
We have five strategies for researching disasters for family history. They come in response to a listener email about her own “disaster-prone family.” Use these tips to learn about natural or man-made disasters, epidemics, travel accidents, and more that affected your ancestors, and very possibly more about your ancestors role in these events.
View of Eastland taken from Fire Tug in river, showing the hull resting on it’s side on the river bottom. Wikimedia Commons image; click to view with full citation.
It might seem a little sad to search out disasters, epidemics, and accidents in the lives of your ancestors, but it certainly helps us see things in a different light. Genealogy Gems Editor Sunny Morton has shared recently how enthralling it has been for her to dig deeper into her ancestor’s experience of living through the Johnstown Flood. She used many of the tools I write about extensively in my book The Genealogist’s Google Toolbox (Google Books, Google Earth Pro, and even YouTube) to add an amazing amount of meat to the bones of the story.
I also recently received an inspiring letter from Natalie, a Genealogy Gems Premium Member about how researching disasters in her family history turned her into a passionate genealogist. Here’s what she said:
“Dear Lisa and Company,
I just subscribed to your Premium podcast and must say that listening to Premium Podcast episode 143 affirmed that I made an excellent decision!
I also had family members who were in the Johnstown Flood, since that’s where my family initially immigrated. My parents and I were born there and [I] have heard of stories of the Great Flood of 1889 since I can remember. There was a long-standing family story about my 2nd great-aunt, Julia Pfeiffer Rohr, being pulled out of the floodwaters by her hair.
Ironically or not, my ancestors relocated to Chicago a few years after the Johnstown Flood, only to have my maternal grandmother’s sister (who was a few months away from her 19th birthday) killed while aboard the Eastland [steamship in 1915]. Not sure why some families are ‘disaster prone’ through the generations, but ours seems to be one of those.
I learned about the Eastland Disaster as an adult when my mother’s half-sister in Chicago wrote and shared a family history with me. As a Twin Cities journalist, I published an article (click here and go to page 5) in one of the community newspapers about the disaster.
Still, at the time, I found next to nothing on the Eastland, which was both frustrating and puzzling. [Since then,] I’ve done a ton of research on the event and have written larger pieces, including a to-be published book. I didn’t intend to become an expert on a shipping disaster, but that’s what happened. Also, this marked my entrance into the amazing world of family history.”
5 Tips for Researching Disasters in Family History
Learn more about the disasters your own family experienced with these 5 tips that I shared with Natalie in the Genealogy Gems Premium Podcast episode 145. Although these tips are for researching the Eastland disaster specifically, you can absolutely put them to work for you!
1. Start with Google. The world’s leading search engine, Google.com can lead to rich resources you may never find in a local library or archive. In the case of the Eastland disaster, a Google search immediately brought up a website dedicated to the event. The casualty list had everyone’s name, age, gender, marital status, ethnicity, and the cemetery in which they were buried.
2. Next, we go to Google Books, where Google takes you deeper and more specifically into historical books. Using the Eastland disaster as our criteria, the first result was a published final report by the American Red Cross’ disaster relief committee on what happened, and how the affected families were helped. Several published histories of the disaster were also listed there. These can be purchased, or you can find copies of them through inter-library loan at your local library. If you just want to see which books in the search results can be read for free, click the Tools button under the search box, and a new menu bar will pop up. Click Any books, then choose Free Google eBooks, like so:
Watch my free video tutorial on finding free e-books on Google. This video is one in a series of tech tip videos available for free at my YouTube channel. Click the Subscribe button while you’re there and you will be notified each time a new genealogy video is published.
3. Keep checking back! New things come online every moment of every day. In 2015, historical video footage about the Eastland disaster was discovered and identified in an online archive (see my blog post about that). But of course it’s impossible to rerun the same searches every day looking for new and updated material. The answer: set up a Google Alert for your search query. That way Google will do the searching for you, and you will receive an email only when Google finds new and updated items that match your search terms. Read my article on How to Set-up Google Alerts for step by step instructions on how to set up your own Google Alerts. Then read How to get the Most out of your Google Alerts for Genealogy.
4. Search YouTube separately. YouTube has several video clips of the Eastland disaster. The Chicago Tribune has wrapped that historical video clip into a short video documentary that includes additional photos their researchers discovered. You’ll also find an animation from the Eastland Disaster Historical Society that recreates what happened and how. Read chapter 14 in my book The Genealogist’s Google Toolbox, Second Edition which is devoted to using YouTube for your genealogy research.
5. Explore Gendisasters.com. This site compiles information on all kinds of tragedies from the past: tornadoes, fires, floods, and buggy-related disasters are just a small sampling of what they cover. You can search by type of disaster, but if you’re not quite sure how it might be filed (like was it a drowning or a ship disaster?), then search by year or place. I looked for Eastland disaster first under ship disasters, and I saw that events are listed alphabetically by place, specifically by city in most cases. There isn’t a way to jump easily to “Chicago,” so I had to scroll through several pages, but I did find it under Chicago, IL Steamer Eastland Disaster, July 1915. Since I already knew the city and date, I could have gotten to it faster by searching under those tabs, but I sure saw just how many events are cataloged at Gendisasters.com. It’s amazing!
Avoid Disaster with the Right Tools
Lastly, some of the disasters you are researching may have a website dedicated to it. The Eastland disaster webpage has several interesting pictures of the ship and the disaster itself. There’s a nice long narrative about the tragedy and some transcribed newspaper articles, as well.
Researching disasters for family history can be exciting and enjoyable. The world wide web is truly like a time machine. See what other ways you can use Google for genealogy in my book, The Genealogist’s Google Toolbox. Effective Google searches, Google Earth, Google Alerts, and Google Translate are just the tip of the iceberg! You will become a Google guru in no time.