Exploring Family Health History: DNA and Your Health

Exploring our family health history is just another reason to look forward to the future of DNA testing. As science advances and we find out more regarding the specific genetic code responsible for various nefarious outcomes in our health, we learn there is more in play than just our genetics.

family health history chart

I recently read an article in the Wall Street Journal about a family who has been plagued with sudden deaths, ten in recent generations. Without warning, their hearts were stopping and no one knew why. That is until Daniel Wiggins died suddenly at the age of 29 and his family sought out a molecular autopsy. Becoming more accessible to researchers as the cost of running these tests drop, molecular autopsies allow a scientific team to analyze the DNA of the deceased, looking for genetic clues to the cause of death. In this case, the genetic sleuthing was able to turn up the perpetrator: a mutation that alters the electrical signals in the heart, causing it to stop. [Read more about this here.]

While this case was clear-cut and the gene was acting seemingly alone without an accomplice, researchers of this disorder say it only happens in 20% of cases. Which means, this devious genetic criminal has other methods we still haven’t tracked.

But for Daniel’s family, they can pursue genetic testing to determine if this specific culprit is lurking in their own genes. If found, they can take precautionary measures, like having a defibrillator installed.

Doing Our Part

Similarly, a family from Pennsylvania used their family reunion as a format for gathering family history and genetic information in order to arm its members with an action plan against a plague of cancer that is sweeping through their family. [See an article on this family here.]

Several members of the Shaffer-Peterson family have discovered a genetic test can alert them to possible pancreatic or skin cancer. Again, a gene affecting a very small number of melanoma patients was identified as the perpetrator of the Shaffer-Peterson family  and has been given a 67% crime rate. This means that the chance of developing cancer if you have this particular gene is elevated by 67%.

Thankfully, melanoma is a particularly curable kind of cancer when caught early. This family has done their part in informing the family as a whole. And, they now have a sort of insurance plan that may protect the lives of their loved ones.

For both the Shaffer-Petersons and the family of Daniel Wiggins, genetic tests produce actionable results to those testing positive. There is something they can do to positively impact their health once they are aware of the presence or absence of these genes in themselves.

Environment or DNA?

Not all diseases or conditions can be attributed to our DNA. This past fall, after talking with my mother about kids and schedules, she added almost in passing, “Oh, by the way, they found another spot on my back, I am going to have it removed next week.” This is the third melanoma spot she has had removed in the past 5 years.

While my mom’s melanoma is less likely to be the result of a genetic abnormality and more likely linked to spending hours lifeguarding at the local pool, the fact she had melanoma was the sole reason I went to the dermatologist. My spot wasn’t cancer. I was just getting older. But, I am glad I went and I feel like knowing my health history has made me more aware of the measures I can take to improve it.

Tracking Your Family Health History

YourDNAGuide Diahan Southard

Diahan offers Genealogy Gems fans a discount on access to her series of videos on understanding DNA testing for genealogy. Click here to learn more.

For most people, molecular autopsies and DNA health tests are not easily available. Not yet. For those that are, there are hundreds of questions surrounding the kinds of genetic tests and the implications for both health and legal issues.

One thing is certain. In these cases, the common thread is family history. We need to know not only the dates and places of our ancestors lives and deaths, but also the stories behind them. Whenever possible, we need to track our health history, so we can identify any trends that our DNA might be trying to tell us.

If you want to start tracking your own health history there are plenty of free and subscription online tools to get you started. In particular, TapGenes was the winner of the 2016 Innovator Showdown at RootsTech. This online and app tool is designed specifically for your family health management.

You can also create your own alternate family tree. In this unique way, you can visually look at age-at-death, diseases, or other factors pertaining to your health. Read our article titled, “How and Why to Create an Alternate Family Tree.”

 

Learn More About Genetics and Genealogy

This special bundle features the 3 new advanced DNA guides by Diahan Southard!
Digital download also available.

Gedmatch: A Next Step for Your Autosomal DNA Test
Gedmatch is a third‐party tool for use by genetic genealogists seeking to advance their knowledge of their autosomal DNA test. This guide will navigate through the myriad of options and point out only the best tools for your genetic genealogy research.

Organzing Your DNA Matches
With over 2.5 million people in the possession of a DNA test, and most with match lists in the thousands, many are wondering how to keep track of all this data and apply it to their family history. This guide provides the foundation for managing DNA matches and correspondence, and for working with forms, spreadsheets, and 3rd party tools.

Next Steps: Working With Your Autosomal DNA Matches
This guide outlines what to do next to maximize the power of DNA testing in genealogy. With this guide in hand, genealogists will be prepared to take their DNA testing experience to the next level and make new discoveries about their ancestors and heritage.

Top 10 Family History Interview Questions

The Top 10 Family History Questions to Ask Your Relatives

Episode 55 Show Notes & Video

Probably the thing I hear most from my viewers and podcast listeners is that they regret not having interviewed their parents, grandparents and other older relatives when they had the chance.

However, it’s never to late to start interviewing relatives about family history. Even if you’re one of the oldest in your family, you have siblings and cousins who have stories to tell.

Every person in your extended family is walking around with a piece of your history in their head. Their memories are unique. No one else knows what they know. And all those memories from all of those relatives piece together like a puzzle to fit into your personal story…and your family’s story…and your kids and your grandkids stories. This means you have a pretty important job to do. You need to capture these stories not just for you, but for all the generations to come.

Use my 10 family history questions to kick off the conversation. Then, move quickly, yet sensitively, into the memories you want to hear about. And memories is the key word here. You want to tap into memories, not just “answers.” That’s why these questions are geared to help your relative go back in time, and provide thoughtful memories while avoiding simply answering yes or no.

These family history questions are also designed to fill in your relative’s backstory, and flush out how it fits into your story. The goal is to open up some new opportunities for learning more about the family’s history.

One important thing to keep in mind is that not everyone has the same energy level and enthusiasm for an interview like this. So don’t try to cover too much in one sitting. With that in mind, we’re going to focus on the top 10 questions that will give you a lot to work with after the interview. You’ll be able to take what you learn and head out for exciting new research that adds color and interest to your family history.

Great questions can uncover great stories, so in the Live YouTube Premiere of Elevenses with Lisa episode 55 I’m going to share with you:
  • my top 10 family history interview questions
  • my Pro Tip for getting an exceptional interview
  • a Bonus Idea that will add value to your family history TODAY.

Now’s the Time to Interview Your Relatives

Probably the thing I hear most from my viewers and podcast listeners is that they regret not having interviewed their parents, grandparents and other older relatives when they had the chance.

However, it’s never to late to start interviewing relatives about family history. Even if you’re one of the oldest in your family, you have siblings and cousins who have stories to tell.

Every person in your extended family is walking around with a piece of your history in their head. Their memories are unique. No one else knows what they know. And all those memories from all of those relatives piece together like a puzzle to fit into your personal story…and your family’s story…and your kids and your grandkids stories. This means you have a pretty important job to do. You need to capture these stories not just for you, but for all the generations to come.

Use my 10 family history questions to kick off the conversation. Then, move quickly, yet sensitively, into the memories you want to hear about. And memories is the key word here. You want to tap into memories, not just “answers.” That’s why these questions are geared to help your relative go back in time, and provide thoughtful memories while avoiding simply answering yes or no.

These family history questions are also designed to fill in your relative’s backstory, and flush out how it fits into your story. The goal is to open up some new opportunities for learning more about the family’s history.

One important thing to keep in mind is that not everyone has the same energy level and enthusiasm for an interview like this. So don’t try to cover too much in one sitting. With that in mind, we’re going to focus on the top 10 questions that will give you a lot to work with after the interview. You’ll be able to take what you learn and head out for exciting new research that adds color and interest to your family history.

Ice Breaker Questions for a Family History Interview

Both of you might be just a little nervous about how the conversation will go. So, just like kicking off a great party, you might need a few good icebreakers.

The first way to break the ice is just let them know how appreciative you are, with something like: “I’m so happy we’re making time for this, and I want to thank you for agreeing to talk with me and share your memories.”  Everyone like to feel appreciated, and you’ve already put that word “memories” out there instead of just “answers.”

Here are a few ice breaker questions you could use. The first two help you reveal how they are feeling about participating in the interview.

Icebreaker Question #1:
Were you surprised that I asked you to sit down for this interview?

Icebreaker Question #2:
Were you looking forward to sitting down for this interview today?

These questions might help uncover any hidden hesitancy on the part of your relative, and help you determine if a little more reassurance is in order. They may have questions about how you are going to use the information they share and where it might be shared. This is your chance to work out the details and make sure you are both on the same page.

Icebreaker Question #3:
Have you done an interview like this before with anyone else in the family?

It’s very possible that you aren’t the first person to interview them. If that’s the case, this is your opportunity to find out who else has been working on family interviews. There may be an opportunity to follow up with the other interviewer and compare findings.

These next two are just for fun:

Icebreaker Question #4:
If you had a whole day with no demands or responsibilities, how would you spend it?

Icebreaker Question #5:
What’s the coolest thing about you in your opinion?

Chances are that the answers to these icebreaker questions may elicit a few laughs getting you both warmed up for a great interview.

It’s totally up to you whether or not your use any or all of these ice breakers. If you have a really great relationship with the person, and you don’t sense any resistance, by all means feel free to jump right into the family history questions.

Pro Tip for an Exceptional Interview

Now before we jump into the 10 family history interview questions, I want to share a Pro Tip with you that will help ensure the interview goes well.

As a genealogy professional speaker, broadcaster and someone who has interviewed hundreds of people, I’ve learned the single most key to a successful interview. If you do this one thing you can’t go wrong, and I can almost guarantee that interviewing your relative will be an incredibly rewarding experience for you both.

So here it is:  Don’t worry about being a great interviewer – be an amazing listener.

Every interview has the potential to be rich, and revealing, but not if you’re not carefully and passionately listening. While you’ll be armed with these 10 questions, only actively listening will reveal where the opportunities are to learn more.

Care more about what you are hearing from your relative than how you are coming off conducting the interview.

If you hear something intriguing, unexpected, or a little tantalizingly vague, stop and inquire about that. Don’t worry about going off script or following the questions exactly. The questions help identify the layers of the onion, but it’s your job to peel off the best pieces. I can’t stress this enough.

I thoroughly prepare for every interview, both family history interviews and interviews I do for the various genealogy shows I produce. But the best and sweetest moments come from something I heard and then asked more about.

Top 10 Family History Questions to Ask Your Relatives

Now that you’ve broken the ice and are focused on actively listening, it’s time to jump into the interview with your relative. 10 questions may not seem like a lot, but these are designed to uncover lots of future opportunities for discovery about your family history. And because you’re going to be actively listening for those intriguing, unexpected, and a little tantalizingly vague comments, you’ll want to reserve plenty of time to dive deeper into them.

Question #1:
Did you know your maternal grandparents?
What do you remember about them most?

Your goal is to get them in “memory mode” and away from yes or no answers. If they struggle initially with remembering, try to help them visualize a time, event or something else tangible and ask for a few details. Often a lack of memory is really a bit of shyness about being “on the spot.” Once they tap into a few specific memories, things will likely start to flow.

Question #2:
Did you know you paternal grandparents? What do you most remember about them?

Question #3:
Who’s the oldest relative you can remember meeting?

The beauty of this question is that it has the potential to reach far back into the family tree. If your relative is in their eighties or nineties, and they met someone when they were a child who was in their nineties, you could potentially gather first-hand information about someone born in the first half of the 19th century!

If no one comes to mind right away, ask them to remember when they were a child, and think about family gatherings and holidays. These were often the times when a rare visit with an elderly relative would likely have occurred.  

Question #4:
Did you have a favorite relative? Who was the relative you most enjoyed seeing?

This is a wonderful tidbit to uncover because it tells you something more about the characteristics they personally value. This interview question is also likely to uncover some fun and entertaining stories.

Question #5:
Who was the funniest person among your relatives?

Like question #4, this question tells you about their sense of humor (what they found funny) as well as some entertaining stories. It also reveals a relative who might be a lot of fun to research further.

Feel free to change “funniest” to any quality or attribute that intrigues you. If you get an enthusiastic response, go ahead and run a few more past them such as:

  • Who was the most serious person in the family?
  • Who was the most unpredictable?
  • Who was the hardest working?
  • Who would be the most likely to give you the shirt off his back?
  • Who was the smartest?

Question #6:
Which relative do you wish you had known better and why?

All of us have relatives we met once or twice but never had an opportunity to really get to know. The nice thing about the answer to this question is that it puts an opportunity in your lap. The person they name would be an ideal person to research further after the interview. Ask about the person in your other interviews with relatives. Do some independent research on them. Pull together what you learn and write a little something up for your relative to include in a thank you card or email. This small effort will further demonstrate your commitment to the family’s history and provide the perfect expression of your gratitude for the interview.

Question #7:
Who was the family historian in the family when you were growing up?

Even if your relative is a lot older than you, and the person they name has passed away, it’s still worth asking. Learn what you can about the person named and then try to get in contact with their descendants. Ask your relative how they knew them, where they lived, and the names of their kids. If you need help finding their living descendants, check out my video How to Find Living Relatives and download the handout (Premium Membership required.)

Question #8:
Remembering back to your childhood, was there a storyteller in your family?

If no one comes to mind initially, ask your relative if they recall hearing stories in the family. Ask, was their “family lore” that everyone was well aware of? You may get a few nuggets of information that could open up new avenues of genealogical research.

Question #9:
What family traditions did you most enjoy?

Family Traditions help bind generations together. Hearing about traditions that may have gone by the wayside can provide clues to the family culture and ethnic heritage. You might even hear about a tradition worth resurrecting.

Question #10:
What haven’t I asked that you’d like to tell me about?

You could also phrase this question as What haven’t I asked you that you were hoping I would? I like both and use them interchangeably. Either way, this interview question is a little insurance policy that there will be no regrets of missed opportunities after the interview is over.

Family History Interview Bonus Idea

Here’s a way to get even more from these 10 questions. Grab a piece of paper (or open a document on your computer), go back and watch this video again and answer these questions yourself. This is your chance to finally write down what you remember.

As the family historian, it’s easy to neglect doing these things for ourselves. Don’t let not telling your own story be yet another regret. Your memories are also an important part of your family’s history. Download the ad-free show Family History Interview Worksheet  (Premium Membership required) in the show notes Resources section. Fill it in and add your stories to your family history today! Then learn more about telling your own story by watching these Premium videos:

Resources

Comments

What are some of your favorite family history related interview questions that you would add to this list? Share yours in the comments below.

Interview with Crista Cowan of Ancestry.com on the 1921 England and Wales Census (Audio podcast)

SHOW NOTES: In episode 291 of the Genealogy Gems podcast, I’ll be discussing the launch of the 1921 England and Wales census on Ancestry with Crista Cowan, Ancestry’s corporate genealogist. The census covers 38 million people and is significant for several important reasons which Crista will explain. She also highlights the importance of understanding the context, including the delay in census day due to a potential worker strike, the impact of World War I on marital status, and new employment details. Our conversation also touches on the use of AI for indexing and the importance of family history storytelling. Listen in as Crista shares her answer to the question “what are you most excited about for the future of genealogy?”  Then we’ll expand beyond the 1921 census as Maureen Taylor, The Photo Detective, shares strategies for identifying your old family photos from the 1920s.

Lisa Louise Cooke and Crista Cowan talking genealogy

Listen to the Podcast Episode

To Listen click the media player below (AUDIO ONLY):

Download this episode’s show notes. (Premium Membership required.  Join today.)

A Conversation with Crista Cowan of Ancestry.com

Fast Facts from the interview about the 1921 Census of England and Wales at Ancestry.com:

• The 1921 England and Wales census is now available on Ancestry.com for users with a World Explorer or All Access subscription.

• Ancestry estimates that around 10-11% of the U.S. population will be able to find close family members in the 1921 Census of England and Wales (according to the 2020 American Community Survey). This suggests that a significant portion of the U.S. population, around 1 in 10 people, have ancestors from England or Wales that they may be able to locate in this new census record collection.

• The 1930 US Census lists over 850K people with a birthplace in England with over 100K of those likely to be found on the 1921 England and Wales Census.

• The 1921 Census of England Wales was conducted on June 19th, 1921, and captures a critical moment in history. It offers a look into the lives of roughly 38M individuals, including those who survived the war and the infamous 1919 flu pandemic.

Head of household completing the 1921 England and Wales Census (image courtesy of Ancestry.com)

Head of household completing the 1921 England and Wales Census (image courtesy of Ancestry.com)

• The next England and Wales Census will not be available until 2051 given the records of 1931 were destroyed during the Second World War and no census was taken in 1941 – adding to the significance of this release.

• Demographic Shifts: 1.7 million more women than men in England and Wales, largely due to the loss of men during WWI.

• This census is the first to include details about employment, including the name and address of the employer and the materials used in the occupation.

• The census was originally scheduled for April 24, but it was delayed until June 19 due to a threatened worker strike. This resulted in an increase in the population count in resort towns and holiday destinations.

1921 England and Wales Census in the newspaper

“Fill Up the Form Day” for the 1921 England and Wales Census (image courtesy of Ancestry.com)

• The census forms asked for information about the people who were living in a household on the night of June 19, regardless of their usual residence.

• There are 25 different forms for the 1921 census, including separate forms for institutions, the armed forces, prisons, and Merchant Marines.

• This census is the first for England and Wales to record divorces.

• There was an increase in the number of widows listed in the census, likely due to World War I.

• People were more likely to report their age accurately in the 1921 census than in previous censuses where they were encouraged to provide round numbers.

• The Scottish census was taken at the same time as the England and Wales census, but the forms were separate.

• Northern Ireland was not included in the 1921 census because they were in the middle of their war of independence.

• Ancestry.com uses artificial intelligence to index handwritten census records.

• Ancestry.com is working on using AI to make search results more findable and to help people connect the dots between different records in their family trees.

Get Answers to Questions about the 1921 England and Wales Census (Timestamps)

Navigate the podcast quickly with the help of these timestamps on the top questions answered in this episode. 

• 01:45 – When was the 1921 census officially available?

• 03:13 – Is the 1921 census available to all Ancestry users?

• 03:38 – When was the 1921 England and Wales census conducted, and how many people did it cover?

• 06:15 – When will the next England and Wales census be available?

• 10:18 – How the census was conducted

• 17:59 – Women and their changing roles as reflected in the census.

• 20:50 – The Marriage Column.

• 22:41 – The accuracy of ages provided.

• 24:28 – Who might not appear in the 1921 census, even though they were physically there or nearby?

• 28:45 – How AI faced the challenges of handwritten census entries.

• 32:51 What is Crista most excited about these days when it comes to genealogy and what’s coming next from Ancestry.com?

Identifying Photos from the 1920s with Maureen Taylor, The Photo Detective

Maureen Taylor’s expertise as a photo detective can help you unlock the stories behind family photographs from the 1920s in several ways:

1. Identifying clues in the photographs

Look for details like the clothing, hairstyles, technology, and background elements to help date the photographs and provide context about the time period.

2. Considering the physical format

Examine the size, paper type, and borders of the photographs to determine the camera and printing methods used. These can offer insights into when the photos were taken.

3. Exploring the context

Review the full set of family photographs, not just individual images. This can reveal patterns, missing pieces, and the broader story behind the photos.

4. Asking questions

By asking thoughtful questions about the photos, it can help uncover hidden details and stories that the family may have overlooked or forgotten over time.

5. Providing a fresh perspective

Asking a friend, fellow genealogist or an expert like Maureen to review your photos can bring a new lens to examining the photographs, spotting details and connections that the family members may have missed due to their personal connection to the images.

Visit Maureen Taylor The Photo Detective.

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Premium Episode 158 Highlights from this episode include: An exclusive interview with Deborah Thomas of the Library of Congress about Chronicling America, the historical newspaper website; A loving daughter is stunned to hear her father’s voice 35 years after his...
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