There’s been a lot of buzz lately over 23andMe’s genetic testing products and services. The company has ongoing issues with the Food and Drug Administration (FDA), which requires paperwork and data they say 23andMe hasn’t provided. A class-action lawsuit is in the works. But the second issue is creating most of the buzz outside of genealogy circles: the idea that 23andMe’s genetic tests could be used to create “designer babies.”
First: FDA
So why does the FDA, a U.S. regulatory agency, care about genetic genealogy kits? Because they’re marketed as more than that. 23andMe describes their kits as tools for helping users make more informed decisions about their personal health. (See the letter sent by the FDA for more details.)
Bottom line? “FDA is concerned about the public health consequences of inaccurate results from the PGS [Personal Genome Service] device; the main purpose of compliance with FDA’s regulatory requirements is to ensure that the tests work….Therefore, 23andMe must immediately discontinue marketing the PGS until such time as it receives FDA marketing authorization for the device.” (emphasis added)
A news reporter describes his experience with 23andMe as very much about health information, not just ancestry: “I apparently have a higher risk of thromboembolism, Alzheimer’s, age-related macular degeneration, type 1 diabetes, melanoma, rheumatoid arthritis, restless leg syndrome, esophageal squamous cell carcinoma, and a number of other conditions I’d never even heard of,” he writes. He adds that the 23andMe site “provides recommendations for lifestyle adjustments and links to medical websites all in the interest of giving me, and others, a chance to review built-in genetic health risks.”
FYI, 23andMe immediately responded to the FDA’s letter with a public statement. “We recognize that we have not met the FDA’s expectations regarding timeline and communication regarding our submission. Our relationship with the FDA is extremely important to us and we are committed to fully engaging with them to address their concerns.”
Many genealogists are wondering what happens next for current 23andMe customers and the products under fire. Legal Genealogist Judy G. Russell’s blog offers suggestions for customers and an interesting legal perspective. The most recent development is a class action law suit that has been filed against 23andMe (read about it on Forbes).
Designer babies?
But a bigger story has been unfolding, too: the idea that 23andMe’s genetic testing could be used to select (or de-select) genes in unborn babies. Wired recently reported that “23andMe has developed a system for helping prospective parents choose the traits of their offspring, from disease risk to hair color. Put another way, it’s a designer baby-making system.”
The story explores existing technologies for pre-selecting genes for babies. Wired quotes 23andMe as saying they have no current plans for using their data this way because there’s no existing demand for it. The issue raises strong feelings on many sides of the question. The idea that future generations could sidestep serious genetic medical conditions appeals to many. But a lot of other ethical and social questions come up.
These stories remind me that genealogy–gene-ealogy–is about so much more than the past! It’s also about what we do with our lives now and the fate of future generations.
What do you think? Join the discussion by leaving your comments.
The Texas State Genealogical Society 2015 Family History conference kicks off in less than 2 weeks. I’ll be there! Can you come? Here’s a discount code just for Gems fans!
My home state of Texas does EVERYTHING in a big way. So it’s no surprise the upcoming Texas genealogy conference will pack so much into their 2-day event, October 31 – November 1. Here’s a run-down of the weekend AND my friends-and-family discount code that you can use to save on registration.
2 KEYNOTE SPEAKERS. I’m looking forward to sharing the keynote stage with J. Mark Lowe, an expert genealogist and a very skilled and fun teacher. I think we’ll all have a lot of fun during these presentations.
GET-IT-DONE WORKSHOPS. Come and learn super practical skills to move your family history research ahead! I’m teaching “Learn How to Time Travel with Google Earth” and “How to Use Evernote for Genealogy” (Levels 1 and 2). Mark will teach a workshop on Genealogical Research in the South and another called “Following a Case through Court.”
43 CLASSES IN 14 TRACKS. Beginners are welcome–and intermediate/advanced researchers will have plenty to chew on–during 2 days of breakout sessions with topics that include: Genealogy for Beginners, DNA, African-American Research, Courthouse Records & Records Loss, Adoption, Hispanic Research, Methodology, Libraries & Repositories, Historical Context, Societies & Communities, and Digital Genealogy.
Early-bird registration has officially ended, but I have coupon code that passes on my friends-and-family discount to YOU. Use coupon code family20 to get $20 off the $150 fee for the full 3-day registration or coupon code family10 to get $10 off any single-day registrations. Click here to register now.
P.S. You can share this code with YOUR friends and family! Please do, in fact! Thank you!
Click below to read more about attending genealogy conferences:
This week’s Friday records post is all about Swedish genealogy! Findmypast has added 12 million Swedish records to their international collection, and we’ll show you other resources for accessing similar records. We’ll also highlight some past unique collections for Sweden, and you can explore expert research tips from a professional genealogist.
Featured: Swedish Genealogy Records Online
June 6 is the National Day of Sweden, which honors two historical events: Gustav Vasa being elected king on June 6, 1523, and the adoption of a new constitution on June 6, 1809. After decades of discussion, the Swedish parliament finally voted to make June 6 a public holiday. And we can’t think of a better way to observe than to spend time researching your Swedish ancestors!
As Findmypast continues to grow their international records database, they’ve highlighted the recent addition of Swedish records to their collection. Over 12 million Swedish baptisms, marriages, and burials are now dating back to 1611 are now available to search on Findmypast. These records will also generate hints against your Findmypast family tree.
Their Swedish collection consist of the following indexes:
If you’re a Findmypast subscriber, head over there now to explore these indexed records. If you’re not a Findmypast subscriber, you can explore select Swedish baptisms, burials, and marriages at Ancestry.com. You can also find select Swedish baptisms, burials, and marriages at FamilySearch.org for free.
Unique Swedish Genealogy Resources
Swedish Newspapers. A couple of years back we highlighted the Minnesota Historical Society’s collection of Swedish-American newspapers. They are available through an online portal. Users can explore more than 300,000 pages from 28 different Swedish-American newspaper titles published across the U.S. between 1859 and 2007. The portal is available in Swedish and English and includes a keyword search.
Biographies of notable Swedish women. The Chicago Evening Post reported on a new online biographical dictionary of women in Swedish history. The site itself is Svenskt kvinnobiografiskt lexicon (it does have an English-language home page). The home page encourages visitors to “Read up on 1,000 Swedish women from the Middle Ages to the present day. Use the search function to reveal what these women got up to, how they were educated, which organisations they belonged to, where they travelled, what they achieved, and much more. All of them contributed in a significant way to the development of Swedish society.” According to the Chicago Evening Post, the current collection of 1,000 biographical sketches will soon double (at least)
Expert Swedish Genealogy Research Tips
Swedish genealogy can be daunting. Many people avoid Swedish research because they don’t speak the language and because the names change every generation–like from Ole Olsson to Ole Nilsson to Nils Pehrrson. Despite these barriers, Swedish research can be relatively simple, fun, and successful! In a special guest article, Paul Woodbury, a Senior Genealogist with Legacy Tree Genealogists, shares the following 5 things to keep in mind when researching your Swedish ancestors:
You can “read” many records without reading Swedish.
Family events are summarized in Swedish clerical examinations.
Many Swedish records cross-reference each other.
You can trouble-shoot record gaps.
There are some excellent Swedish indexes and databases online.
About the Author: Lisa Louise Cooke is the producer and host of the Genealogy Gems Podcast, an online genealogy audio show and app. She is the author of the books The Genealogist’s Google Toolbox, Mobile Genealogy, How to Find Your Family History in Newspapers, and the Google Earth for Genealogy video series. She is an international keynote speaker and the Vice President of the Genealogical Speakers Guild.
Disclosure: This article contains affiliate links and Genealogy Gems will be compensated if you make a purchase after clicking on these links (at no additional cost to you). Thank you for supporting Genealogy Gems!
Show Notes: I’m excited to share with you my favorite new tool at Google Books. This is a game changer for utilizing the information you find on the digitized pages. Plus I’ll show you other new features recently added to Google Books.
Why use Google Books for genealogy? Well, Google Books features over 10 million free digitized books, most of which were published prior to 1927. That makes Google Books a gold mine for genealogy research. And when you visit Google Books, think “published on paper” NOT just books! In addition to books, the collection includes newspapers, magazines, journals, almanacs, city directories, catalogs, court papers and so much more!
Watch the Video
Why use Google Books for genealogy?
Google Books features over 10 million free digitized books, most of which were published prior to 1927. That makes Google Books a gold mine for genealogy research. And when you visit Google Books, think “published on paper” NOT just books! In addition to books, the collection includes newspapers, magazines, journals, almanacs, city directories, catalogs, court papers and so much more!
On the results page look for the filter menu. If you don’t see it, click the Tools
Click the down arrow for Any View
Click Full View
Now your results list only include free fully digitized materials.
If you haven’t been over to Google books for a while, this is going to look a little bit different. A while back they launched a new user interface. They’ve now made some improvements. The main difference is we’re going to see this menu along the bottom of the screen.
My favorite new feature: convert image to text
Before we even look at the new menu, I promised you my favorite item that they have added to Google Books.
In the upper left corner, click the three vertical dots icon. This reveals a menu that gives you access to a lot of items that typically are kind of ‘behind’ the book. If you were to close this book, you would see the catalog entry for it.
New menu at Google Books
My favorite new feature here is View as Plain Text. Click the toggle button to convert the entire book to plain text. This makes the digitized images of the pages usable in many other projects and programs. Google applied optical character recognition to the books to be able to read the words on the images to make the books keyword searchable. In the past, we had to use the clipper tool to capture a bit of the image and convert it to text. The box was really small and inconvenient. This new feature provides the ability to instantly use as much of the text as you want.
Convert digitized books to text in Google Books
Because this book is fully digitized, it’s already been cleared for copyright. These books are in the public domain. They are available to use for free, copyright free. You are free to copy the text and include it in your projects, in your genealogy database, in a family history book, and so on.
Download a book
Back over at the three-dot menu in Google Books, you can also:
download the book as a PDF or EPUB for free,
find the book in a store, if you need a hard copy
find the book in a library at WorldCat.
Keyboard Shortcuts Hot Keys
Another new feature is keyboard shortcuts.
Google Books shortcuts / hot keys
Find Book Catalog Entry
I mentioned that the catalog entry for this book is sort of ‘behind’ the book. To access that, click the X in the upper right corner of the screen. This removes the view of the book. We haven’t lost access to the book. You can still access it by clicking the blue Read free of charge button.
The nice thing about the book catalog entry page is that it contains all the details about the book such as where you can purchase it, finding copies at the library, and additional editions.
Source Citation Tool at Google Books
Also on the catalog entry page is the Source Citation tool. Click create citation to reveal the options. Click the desired style, and then copy the citation and paste it in your family tree database, or other places where you are referencing this book. So, there’s no reason not to cite your source for any book found at Google Books. Source citation is very important, because down the road you might discover something more about your family and realize that you need to access that book again. Without the source citation you may not remember where you got the original information. The source citation is your breadcrumb trail back to the previous research that you’ve done. Also, if anybody ever has a question about what you have put in your family tree, you can point them to the sources that you used.
New Google Books Menu
The final new feature at Google Books that I wanted to draw your attention to is the main menu for this item. It used to be at the top of the screen, but now you’ll find it at the bottom. At the top of the screen, we now have a search box that allows you to search the entire Google Books collection. But oftentimes, when you’re looking at a book, you’re going to want to be able to search for particular names, places, dates, events, topics. You will find the search field for that in the new menu at the bottom of the screen. Type in names or other words and press enter. You’ll be given all of the pages in the book that mention those words. Also, in this menu are:
zoom buttons,
chapters menu (if available for the book you are viewing)
page views (single, side by side or thumbnails.)
Clip and download an image from a book
Also in the new menu is the clipper tool. The materials in Google Books contain maps, drawings, photos and many other types of imagery that you may want a copy of. Or perhaps you just want an image of a section of text. The clipper tool allows you to capture it and save it to your computer as an image file.
Click the scissors icon, and your mouse cursor will turn into a clipper.
Draw a box around the desired area
In the pop-up box click to copy the link to the clipped image.
Open a new web browser tab and paste the link. (You can also paste the link into notes in your family tree, and other programs and documents.)
Press enter and the image will appear in the browser tab.
Right-click on the image.
Select Save Image As to save it to your computer’s hard drive.
There you have it, some of the exciting new features over at Google Books. There’s never been a better time to search for information about your family history in Google Books.
So why does the FDA, a U.S. regulatory agency, care about genetic genealogy kits? Because they’re marketed as more than that. 23andMe describes their kits as tools for helping users make more informed decisions about their personal health. (See the letter sent by the FDA for more details.)
But a bigger story has been unfolding, too: the idea that 23andMe’s genetic testing could be used to select (or de-select) genes in unborn babies. Wired recently reported that “23andMe has developed a system for helping prospective parents choose the traits of their offspring, from disease risk to hair color. Put another way, it’s a designer baby-making system.”
fans!
