Exploring our family health history is just another reason to look forward to the future of DNA testing. As science advances and we find out more regarding the specific genetic code responsible for various nefarious outcomes in our health, we learn there is more in play than just our genetics.
I recently read an article in the Wall Street Journal about a family who has been plagued with sudden deaths, ten in recent generations. Without warning, their hearts were stopping and no one knew why. That is until Daniel Wiggins died suddenly at the age of 29 and his family sought out a molecular autopsy. Becoming more accessible to researchers as the cost of running these tests drop, molecular autopsies allow a scientific team to analyze the DNA of the deceased, looking for genetic clues to the cause of death. In this case, the genetic sleuthing was able to turn up the perpetrator: a mutation that alters the electrical signals in the heart, causing it to stop. [Read more about this here.]
While this case was clear-cut and the gene was acting seemingly alone without an accomplice, researchers of this disorder say it only happens in 20% of cases. Which means, this devious genetic criminal has other methods we still haven’t tracked.
But for Daniel’s family, they can pursue genetic testing to determine if this specific culprit is lurking in their own genes. If found, they can take precautionary measures, like having a defibrillator installed.
Doing Our Part
Similarly, a family from Pennsylvania used their family reunion as a format for gathering family history and genetic information in order to arm its members with an action plan against a plague of cancer that is sweeping through their family. [See an article on this family here.]
Several members of the Shaffer-Peterson family have discovered a genetic test can alert them to possible pancreatic or skin cancer. Again, a gene affecting a very small number of melanoma patients was identified as the perpetrator of the Shaffer-Peterson family and has been given a 67% crime rate. This means that the chance of developing cancer if you have this particular gene is elevated by 67%.
Thankfully, melanoma is a particularly curable kind of cancer when caught early. This family has done their part in informing the family as a whole. And, they now have a sort of insurance plan that may protect the lives of their loved ones.
For both the Shaffer-Petersons and the family of Daniel Wiggins, genetic tests produce actionable results to those testing positive. There is something they can do to positively impact their health once they are aware of the presence or absence of these genes in themselves.
Environment or DNA?
Not all diseases or conditions can be attributed to our DNA. This past fall, after talking with my mother about kids and schedules, she added almost in passing, “Oh, by the way, they found another spot on my back, I am going to have it removed next week.” This is the third melanoma spot she has had removed in the past 5 years.
While my mom’s melanoma is less likely to be the result of a genetic abnormality and more likely linked to spending hours lifeguarding at the local pool, the fact she had melanoma was the sole reason I went to the dermatologist. My spot wasn’t cancer. I was just getting older. But, I am glad I went and I feel like knowing my health history has made me more aware of the measures I can take to improve it.
Tracking Your Family Health History
Diahan offers Genealogy Gems fans a discount on access to her series of videos on understanding DNA testing for genealogy. Click here to learn more.
For most people, molecular autopsies and DNA health tests are not easily available. Not yet. For those that are, there are hundreds of questions surrounding the kinds of genetic tests and the implications for both health and legal issues.
One thing is certain. In these cases, the common thread is family history. We need to know not only the dates and places of our ancestors lives and deaths, but also the stories behind them. Whenever possible, we need to track our health history, so we can identify any trends that our DNA might be trying to tell us.
If you want to start tracking your own health history there are plenty of free and subscription online tools to get you started. In particular, TapGenes was the winner of the 2016 Innovator Showdown at RootsTech. This online and app tool is designed specifically for your family health management.
You can also create your own alternate family tree. In this unique way, you can visually look at age-at-death, diseases, or other factors pertaining to your health. Read our article titled, “How and Why to Create an Alternate Family Tree.”
Gedmatch: A Next Step for Your Autosomal DNA Test Gedmatch is a third‐party tool for use by genetic genealogists seeking to advance their knowledge of their autosomal DNA test. This guide will navigate through the myriad of options and point out only the best tools for your genetic genealogy research.
Organzing Your DNA Matches With over 2.5 million people in the possession of a DNA test, and most with match lists in the thousands, many are wondering how to keep track of all this data and apply it to their family history. This guide provides the foundation for managing DNA matches and correspondence, and for working with forms, spreadsheets, and 3rd party tools.
Next Steps: Working With Your Autosomal DNA Matches This guide outlines what to do next to maximize the power of DNA testing in genealogy. With this guide in hand, genealogists will be prepared to take their DNA testing experience to the next level and make new discoveries about their ancestors and heritage.
Boost your Google search skills with this free video class on Google for genealogy, presented at RootsTech 2016 by Google expert Lisa Louise Cooke.
“Everyone should be using Google to search for their family history!” That’s Lisa Louise Cooke’s mantra. Google reaches deep into so many different kinds of content on the internet. Google search tools help us discover ancestors’ names mentioned online; locate records we need; and discover historical details, images and maps that help us better understand their lives. And Google is FREE.
But Google works best when you follow a well-executed search methodology, just like in other aspects of genealogy research. At RootsTech 2016, Lisa taught a powerful and popular Google search for genealogy methodology class to a packed audience in a session that live-streamed around the world. Watch her dynamic, informative class below for free. Kim wrote in to say that the class “was the best one I’ve seen thru the free streaming [RootsTech]….Thanks for sharing free content with those of us who can’t afford to spend any money on genealogy.”
This class content comes from Lisa’s book, The Genealogist’s Google Toolbox (2nd edition). In it you’ll find all you need to know to take your hit-and-miss online searches to a powerful, proven search methodology for finding your ancestors online–and everything else you’re looking for! There are step-by-step instructions, screenshots and powerful examples for topics such as basic and advanced Google searching, Google Books, Google Earth, Google Scholar, Google Alerts, Google Translate and even YouTube.
More Google for Genealogy Gems
Keep learning from Lisa! Click below to read more proven Google search methodologies for genealogy.
The Genealogy Center: Elevenses with Lisa Episode 31
If you’re looking for a wide array of free online genealogical records for your family history, look no further than then Allen County Public Library’s Genealogy Center in Fort Wayne, Indiana. It’s the second largest genealogy library in the country. In addition to the in-house collection, the Genealogy Center offers a vast amount of free digitized resources through their website and partnerships with other websites.
I invited Allison Singleton, Senior Librarian at the Allen County Public Library Genealogy Center in Fort Wayne, Indiana to the show. She is taking us on our tour of the website and sharing her tips and strategies for finding genealogy gems. Watch the video and follow along the highlights with the show notes below:
What is the Genealogy Center?
The Genealogy Center has one of the largest genealogy research collections available, incorporating records from around the world. The staff specializes in genealogy and is always available to help. Visit the Genealogy Center at the Allen County Public Library in Fort Wayne Indiana.
There’s a lot to explore at the Genealogy Center website. Let’s start with the top-level menu on the Home page. Here we’ll find links to important resources such as:
Donations
Genealogy Community
Life StoriesPathfinders
Let’s take a closer look to a few in addition to other free resources available through the large colored buttons on the home page.
Genealogy Community
The Genealogy Community is the place to ask questions, sign up for their e-newsletter, and follow them on social media. They are extremely active on Facebook. You can also learn more about and get in touch with the staff of seasoned family history librarians.
PathFinders
PathFinders is a great place to start your family history search. It provides very small snapshots of what the Genealogy Center has in their collection for any given location or topic. Snapshot categories include:
State Snapshots
Subject Snapshots
International Snapshots
Click on the logo from any page to return to the website’s Home page.
Free Databases at the Genealogy Center Website
The Genealogy Center does not interlibrary loan materials. Their collection is reference only. The website is the perfect place to plan your next visit. That being said, much of their invaluable collection has and is being scanned by Internet Archive and FamilySearch. If it is out of copyright, they work to get it online. So there’s plenty to find from the comfort of your own home.
You can find their Free Databases by clicking Resources on the home page and then Free Databases. These are all searchable and include digitized images that can be viewed from home.
In the Free Databases section you’ll find gateways to other specific areas including African-American and Native American. These provide an excellent place to start your research.
Free databases at the genealogy center
Family Bibles at the Genealogy Center Website
Navigation: Our Resources > Free Databases > Family Bibles The Genealogy Center actively collects scans of family bible records pages.
Learn more about researching family Bibles for family history in Elevenses with Lisaepisode 29.
Watch episode 29 of Elevenses with Lisa to learn how to find and analyze your family bible for genealogy
Donations
You can donate more than just money to the Genealogy Center. They are also looking for research donations. Donating is a great way to make your genealogy research materials easily accessible to your family and other researchers. You’ll find Donations in the main menu on the Home page.
Donated digitized materials are freely available online on their website.
They are actively digitize records.
You can even bring your materials into the library and they will digitize them. You can then keep the originals.
You can also send in your own digitized scans.
Military Records at the Genealogy Center Website
Navigation: Our Resources > Free Databases > Our Military Heritage They are actively collecting military information for inclusion in their collection. The collection includes many unique items donated by other family historians.
Copyright and Usage
The materials on their website are under copyright. You can view one page at a time. However, you can copy and print like you would if you were visiting the library. Include a source citation including the donor name. If in doubt about usage, contact the Genealogy Center.
Searching for Genealogy Center Content
The website is new (in 2020) so Google may not pick up everything in search. Use the website search field to search the entire collection.
Allison’s Catalog Search Tips:
When search the Allen County Public Library catalog, don’t use common words such as county and city.
Also, don’t use the plural form of words. For example, use directory not directories.
After running the search, on the left side of the page under “I only want” filter your results to only the Genealogy Center by clicking Branch and then
If an item is digitized, you will see a Web Link under More Info.
Lisa’s Search Tip: Use Control + F (PC) or Command +F (Mac) to quickly find words in a long list on a results page.
On-Site Databases at the Genealogy Center
You can only access on-site databases while in the library. No library card is required. The library does not offer an online subscription service.
Getting Help Online for Offline Resources
Navigation: On the homepage click Genealogy Community > Ask a Librarian. Here you can send brief questions and requests.
Family History Archives
Navigation: Click Family History Archives on the Home page and you’ll find links to other websites hosting Genealogy Center digitized content. Partners include:
FamilySearch (Public Access)
The Internet Archive (over 110,000 items)
Linkpendium
WeRelate
Over 110,000 Free records at the Internet Archive from the Allen County Public Library Genealogy Center
City Directories at the Genealogy Center
City Directories are a wonderful way to fill in information between census years. The Genealogy Center has the largest collection of city directories in the country. They are in both book form and microfilm.
The city directory collection cover across North American and even includes some international directories.
Compiled Family Histories at the Genealogy Center
Compiled family histories help you stand on the shoulders of other accomplished researchers. They have approximately 70,000 physical books. There are also family histories digitized and on the website. Search for the surname and include the word family. On the results page, filter down to Branch > Genealogy.
Free Consultations and Paid Professional Services
Navigation: Home > Our Services > Consultations. The Genealogy Center offers free (yes, you read that right!) 30-minute consultations with a Genealogy Center librarian. Consultations are held by Zoom, phone or email. You don’t even have to be a library card holder! Prepare well to get the most from your consultation.
You can also hire staff at the Genealogy Center to do more extensive research for you. Another option is to request a list of local professional researchers. Visit Our Services > Forms > Research Form
PERiodical Source Index (PERSI)
Navigation: Home > Our Resources > Onsite Databases > PERiodical Source Index (PERSI) PERSI offers a very wide range of periodicals, some of which are very unique and niche. The PERSI index is hosted by Findmpast. Search the index for free from home at Findmypast. Some of the items require a subscription.
Allison provided some excellent insider strategies for searching PERSI:
Articles are indexed by title.
Don’t search by keyword or “Who”.
Most people aren’t named in the article titles. Focus on location.
You can order the articles from the Genealogy Center. $7.50 for each form which includes up to six articles. Go to Our Services > Forms > Article Fulfillment.
Resources
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