DNA health reports are becoming a more common option for those who test their DNA for family history. Should you order a DNA health report? Here are the ones Diahan Southard recommends most. Her top pick is inexpensive, available to all testers, and promises confidentiality for your genetic data.
DNA Health Reports May Have Saved a Life
At Rootstech 2017 I was sitting at my booth answering questions and talking with many of you about your experience with genetic genealogy. A woman came up to the booth and exclaimed, “You saved my son’s life!”
She went on to explain that she had come across my booth at a previous RootsTech and engaged me in a discussion about using this kind of genetic genealogy test to find out more about a person’s health. I explained that while the focus of these genetic genealogy companies is to further our ancestral research, the DNA that they test does contain some health information. In fact, 23andMe used to offer a full health report as part of their service, but the FDA decided they better regulate that sort of thing, and put the kibosh on it. I told her that while 23andMe is slowly edging back into that arena, you can find out some interesting personal health information today, using the results from any of your genetic genealogy testing company.
How to Get DNA Health Reports
1. Download your results. The first step is to download your raw DNA data from wherever you were tested. Just as Lisa Louise Cooke is always encouraging us to be the owners of our own family tree data, we should be the owners of our own genetic data, too. Save a copy of your raw data to your computer. You can find instructions here on my website.
2. Choose a DNA health report provider and upload your DNA. A growing number of companies offer these reports. Within the genealogy industry, 23andMe sells them and recently Family Tree DNA began offering them to existing customers (more on that coming soon).
But the DNA health report provider I recommend the most is Promethease.com. Their service is available to anyone with a DNA sample–you don’t need to test with any specific company. It’s easy and inexpensive: just $5. This report will tell you about various aspects of your health, including your predisposition to certain diseases and ailments, as well as your likely response or sensitivity to certain drugs. And the site promises confidentiality and impartiality, which are crucial in this age. The Privacy statement reassures users, “At no time is your DNA data shared – or sold – to any external party, period. We also do not sell any products like vitamins or supplements.”
Editor’s note: the following paragraph was updated on January 3, 2018: Promethease now offers the option to keep your raw DNA on the site and obtain updated health reports for free at any time. Click here to read more about these options. An email sent to Promethease customers on January 3, 2018 explains, “We added this infrastructure so we could use de-identified stored data to better assess the accuracy of the raw data produced by different companies, platforms and technologies. This will also allow us to provide the best, independent assessment of true vs. false data in future Promethease reports and add new features.” The email also reminded users that updated reports are valuable because the genetic database that fuels the reports “doubles almost every year, and Promethease’s interface is always improving to enable better searching, filtering and exporting options.”
Here’s a screenshot of part of a sample report:
If you would like to read more about Promethease, I suggest reading over the ISOGG wiki page, paying special attention to blog posts by legal and genetic genealogy experts. There is also a Facebook group to ask and answer questions about Promethease.
One more option for DNA health tests that I want to bring to your attention: Livewello. At Livewello you can combine your own personal exploration of your genetics with the tracking of your family’s health. Livewello offers resources about these ailments and predispositions, as well as support groups and chat rooms for you to explore and ask questions. It does have a fee of $19.95 to join, and some of the feature reports do require a monthly subscription fee.
3. Remember that DNA health reports are in their infancy. It is critical to remember that research hasn’t even begun to scratch the surface of the complex way our genetics interact with other factors in order to make our bodies work. So whatever you see on these kinds of reports, take it for what it is: just information, not some kind of crystal ball. If you see something concerning, you may want to consider talking to a genetic counselor.
This woman at my booth found out some interesting information on Promethease, then consulted the professionals already involved in her son’s care, ultimately changing the course of his treatment, and she believes, saved his life.
As more and more people get genetic testing completed, more and more tools are becoming available to track your personal health history. Whatever you decided to do, please remember that your raw data contains your own personal information that does identify you uniquely from anyone else on the planet. While you shouldn’t be afraid to try new tools and explore your personal genomics, it is very important to read the privacy information of each company carefully to be sure you know what you are consenting to when you are uploading your data. Most companies are fastidious about privacy, but many are also involved in research endeavors, including pharmaceuticals, so please be aware before you upload.
As the genealogists in the family, we are the keepers of many important truths and documents, and certainly, that includes our important health information.
Your DNA is Part of Your Story
Watch this free webinar with Your DNA Guide Diahan Southard to learn more about the role your DNA plays in your story. Get inspired, get informed–and get digging into your DNA! Click on the video below to watch it now.
Show Notes: The FamilySearch Wiki is like an encyclopedia of genealogy! It’s an invaluable free tool that every genealogist needs. However, many folks get frustrated when they try to search the Wiki. In this week’s video premiere I’m going to help you navigate with ease.
Video and Show Notes below
You’ll learn:
what the Wiki has to offer,
how to access the FamilySearch Wiki
how to navigate the FamilySearch Wiki effectively
and how to overcome the number #1 reason people get frustrated when searching the Wiki!
(00:42) There are two ways to access the FamilySearch Wiki. The first is to visit the website direction at https://www.familysearch.org/wiki. This will take you to the home page of the Wiki. Although you can sign into your free FamilySearch account on this page (in the upper right corner) it isn’t necessary in order to use it.
The second way to access the Wiki is to go to the FamilySearch website. You will need to log into your FamilySearch account or sign up for a free account if you don’t already have one. Once you’re signed in, then in the menu under Search click Research Wiki. This will take you to the same FamilySearch Wiki home page. However, you will see that you are signed in and able to use some of the additional features like participating in discussions, posting and creating watchlists.
On the FamilySearch website: Search > Research Wiki
Searching the Wiki by Location
(01:21) On the home page, what you see a map of the world. This is a great way to search the Wiki because in genealogy, it’s really all about location. We need to know where geographically we want to search for ancestors, and from there we can narrow down the timeframe. Typically, you’ll have a sense of at least in which country you need to be researching. So, the map is typically the best way to start.
The FamilySearch Wiki Home Page
You’ll notice also on the home page, there is a search by place or topic search field. You could bypass using the map, and just start by typing in a place. If you do, you’ll notice that it starts to prompt you on the kinds of things that are commonly searched for. This could be kind of nice if you are really focused on a particular thing such as Italian census records. You can just start typing Italy and see if census is one of the prompts. If it is, simply click it and it will take you right there.
However, generally speaking, the map is the best way to search for records and information that is rooted in a location. Start by clicking the button for the continent, such as North America. Notice that if you go to click on the map itself, it isn’t an interactive map. You’ll need to actually click the button.
From there, select the county from the menu, such as United States, then drill down by state. This will take you to the Wiki entry for that state.
You’ll notice that the FamilySearch Wiki is a lot like Wikipedia. It’s like an encyclopedia of information. But the exciting part is that it’s genealogy specifically! This means you don’t usually have to worry about including the word genealogy in your searches.
Location-based FamilySearch Wiki Pages
Oftentimes, our research ends up taking us to a new location where the next set of great grandparents came from. If we’re not familiar with that location, let alone familiar with what’s available from a genealogical standpoint, that can pose a real challenge. You might be asking questions like when did they start recording birth records? Or did that state conduct a state census? Every state, every country, and every county has different types of records available.
Start your orientation over on the right-hand side of the wiki page. There you’ll typically find an overview box.
(04:15) This is a great place to quickly see what’s available here, and what you could dig into further. If you’re really new to research in this particular area, you might want to start with the guided research link. You may also see links to research strategies, and a record finder.
In the next section of the box you’ll find record types. This is going to be different depending on the area that you’re researching. For example, if they don’t happen to have any military records available you might not see that listed under record types. You should expect to see the most commonly used records included in the list. Click the link to the page for more information on that type of record. It will provide more details on record availability, and where you access the records.
Further down the box you’ll find links to background information on the area. It’s really easy to skim over this in excitement over records. But if you don’t want to get stuck at a brick wall, getting to know the place that you’re researching can make all the difference. Learning the background of an area can help you prepare the right questions to ask. It can help prevent you from looking for something that doesn’t exist or that wasn’t applicable to that area. You may find links to more reading, gazetteers and maps, migration patterns, periodicals, and the law. Understanding the law is going to help you understand why records were created, and who they affected. For example, if your ancestor was under 18 there might be certain records that don’t apply to them. Understanding the parameters of who was affected by the law will help guide you through the records themselves.
Next you’ll see cultural groups that you might expect to find in this area, and links to more specific information about researching them.
Under Resources you’ll find links to archives, libraries, societies, and the family history centers that are available in this particular area.
At the top of the main part of the page you’ll find the Getting Started section. Here you’ll find links to beginning step-by-step research strategies and some of the most popular records for that location such as vital records.
(08:35) You might be wondering who is putting this information together. Well, it starts with experts at the Family History Library in Salt Lake City. These are people who have worked the reference desks and found answers to thousands of patron questions.
Locating and Using the County Wiki Page
(09:22) Back on the state landing page scroll down further to the map of counties. Navigating by location is still important, even when we’ve narrowed it down to the state. Unlike the map on the homepage, you can hover your mouse over each county and click.
County map on the state wiki page
The county pages are where the real magic happens because many records such as birth, marriage, death, and court records are typically available at the county level. Here you’ll find out how to contact or visit the current county courthouse.
One of the most common questions new genealogists ask is “should I be looking at the county where the town is located today, or the county that it was when my ancestors lived there?” Counties certainly do change over time. The answer to the question is that we go to the county at the time that are ancestors lived in the area. In fact, the Wiki page provides the history, or genealogy, of the county. Look for Boundary Changes on the page.
Because these pages are often quite long and dense, use your computer’s Find on Page feature by pressing Control + F (PC) or Command + F (mac) on your keyboard. This gives you a nice little search box at the top of the page. Type in a keyword like Boundary and it will highlight all the locations on the page where the term appears. This is a great way to make quick use of the Wiki. This is also a good trick to use when you don’t see the record type or keyword that you’re looking for in the page’s table of contents. It may be called something else there, but if you search the page for your keyword, it should find it for you. An example of this is that you may not see Birth Records in the TOC because they list Vital Records. However, in the Vital Records section further down the page they definitely mention birth records.
Finding the Dates that Records Began
(14:45) Here’s another reason the wiki is so helpful, and it makes things go so quickly. Remember, we talked about that location is key, but also timeframe. Well, if we are looking for genealogical records, we don’t want to look for a record in this county before they actually started creating those records. The wiki typically provides a nice little chart on each county page showing then some of the most important civil records such as birth, marriage and death were first created.
County record dates at FamilySearch Wiki
Often times civil records began much later than church records. Sometimes you will see an asterisk indicating when statewide registration for these civil records began and then another date indicating when general compliance was enforced. All of this is guiding us to success in finding genealogy records, and it’s saving the headache of investing time looking for records that did not yet exist.
(17:42) Further down the page you’ll find links to places. These may link to town pages on the Wiki, but more likely they will take you to Wikipedia where this information already exists. There will be a small icon indicating that the link will open in a new tab and take you to another website.
Next you’ll likely see a Timeline section which gives you a sense of when the first people settled in the county and who those people were. Again, it provides you more context to better understand the records.
In addition to all these individual records, many of them linked over toFamilySearch, Ancestry or MyHeritage, we see Research Facilities. Why is that so important? Because not all records are going to be online. When we’ve exhausted online records and resources we need to go offline, and there are lots of resources here on the wiki to work with: county archives, family history centers in the local area, libraries, museums, and genealogical societies. The wiki provides contact information and links to their website where you may be able to see a listing of what they have onsite so you can plan your visit.
Other website links may take you sites like USGenWebwhich is a fantastic free genealogy website. It’s organized by location much like the FamilySearch wiki website. Drill down to the state and then the county. You may also see links to the State Archive, or the state’s Memory project, and, of course, the FamilySearch catalog.
How to Overcome the #1 Search Problem
(22:01) The wiki really should be one of your first stops when you’re going to be starting research in a new area. Let’s wrap up with a quick conversation about the wiki’s search box. You could go ahead and put a topic in there. Many people will come in here and they’ll type in marriage records, Randolph, County, Indiana, and they will get a list of results. They don’t look as clear cut as Google results, and they may not all be on topic. This is where we can get lost. I think probably the number one reason why people give up on the wiki is they get these kinds of search results. They realize, wait a second, this isn’t even Indiana, it’s talking about Kentucky! Why am I getting all these? It can be frustrating.
The wrong way to search at the FamilySearch Wiki
This happens because we tried to do it ourselves, with our own keywords. Remember, like most search engines, they’ve indexed their content to make it searchable, so that means they’ve already decided how they want to talk about a particular topic. Rather than just addressing marriage record first, the wiki focuses on the location. Where is this marriage record? So, focus first on the place unless you are just looking for general information on a general genealogy topic such as genealogy software.
Pay attention to the pre-filled suggestions as you type because the wiki is going to suggest what it has in the format it has it. Again, you may want to first go to the country, state or county level page and then look for the record type.
What if you’re looking for marriage records but you don’t see them listed? Well, it might be that the word marriage isn’t the keyword the wiki uses. Or it might be that the type of record you’re looking for is a state or federal record. That’s another reason why the find on page feature (Ctrl + F) is so helpful. Don’t be discouraged if you don’t see what you want listed in the table of contents. It may just be a keyword issue. Let the work that they’ve already done in organizing their materials guide you. You’ll be more successful and also avoid frustration. The FamilySearch Wiki is just too good of a resource to miss.
Learn more about using Family Search at Genealogy Gems
Lisa Louise Cooke will be a featured keynote presenter at the Ontario Genealogical Society conference 2016, June 3-5 in Toronto, Canada.
The biggest genealogical event in Canada is coming–and Lisa Louise Cooke will be there! Members of all 34 branches and special interest groups of the Ontario Genealogical Society and other family historians from across North America and around the world will meet in Toronto from June 3-5, 2016 for inspiring lectures, workshops, displays, and other learning opportunities.
Here’s why people are excited about the Ontario conference:
As an internationally-renowned genealogy technology innovator, Lisa will deliver a plenary lecture relating to the conference’s theme, “On the Cutting Edge.” This Saturday morning keynote will be “Future Technology and Genealogy: 5 Strategies You Need.” The audience will be treated to a vision of genealogy research as technology speeds ahead into the future. Lisa will teach five key strategies to employ right now that will make the ride easier–and the results more exciting–than ever.
The Scoop
WHAT: Ontario Genealogical Society Conference 2016
WHEN: June 3-5, 2016
WHERE: International Plaza Hotel,655 Dixon Road, Toronto
REGISTER: Click here for full conference information
Attend Lisa’s Sessions
“Using Google to Enhance Your Genealogy Research,” a workshop outlining a “Google Search Methodology for Genealogy.” The workshop features a variety of free Google tools that can help solve genealogical challenges. You’ll also discover advanced Google search strategies you may not be using but are “must-haves” for high-quality Google search results. You will walk away with a proven Google search methodology, and powerful tips and tricks you can use right away.
“How to Create and Leverage Your Own YouTube Channel for Genealogy.” Don’t let the video revolution pass you by! YouTube Mobile receives more than 100 million views a day and is the #2 search engine on the planet. It’s becoming the first place many people turn to for answers, including fellow genealogists. Video content on your own website can also drive more traffic to your site. This presentation shares Lisa’s tips and tricks for creating a robust YouTube channel that will power-boost your genealogical efforts.
Visit Lisa in the Exhibit Hall
Lisa will be in the exhibit hall at her booth (next to Shop the Hound) signing books, and answering questions. Lisa’s daughter Lacey will be there helping you at the booth. She will have special discounts and a money-saving conference bundle just for this conference.
You won’t want to miss the exhibit hall this year. OGS Conference 2016 will feature a spacious 10,000-square-foot Expo Hall, just steps away from the lecture rooms. There will be displays from genealogical and historical organizations, and commercial exhibitors. You’ll also have an opportunity to check in with all the various branches of OGS and see their specific publications.
About the Ontario Genealogical Society Conference 2016
The entire conference offers something for everyone, and with its convenient location in Toronto, is an easy over-the-border jaunt for many U.S. residents, too. Thursday’s preconference activities include a boot camp for librarians and a session on business skills for genealogists. Friday’s events include off-site tours (World War I history or genetics interest) and workshops including Lisa’s. Saturday’s calendar leads with Lisa’s keynote and then explodes into 24 concurrent sessions and other exciting sponsored events.
Registration
This quick link will take you right to online registration. There are full and partial registration options.
Can’t Make It to the Ontario Genealogical Society Conference 2016? Don’t Fret!
Wish you could catch Lisa’s Google search methodology workshop? Don’t worry–it’s fully described in her book, The Genealogist’s Google Toolbox. This 2nd edition was completed revised and updated for 2015, with thorough, step-by-step instructions on Google search techniques and new chapters on searching for common surnames, Google Scholar and Google Patents (yes, you can use these for genealogy!). Screenshots and detailed explanations will lead you through Google Alerts, Gmail, Google Books, Google Translate, YouTube and Google Earth (multiple chapters on THIS powerful 3D map).
How to Get DNA Health Reports
