AncestryDNA Opt-Out Options for DNA Matches: What This Means for You

A new AncestryDNA opt-out option allows DNA test takers to not participate in DNA match lists: they do not receive matches or show up in others’ match lists. Your DNA Guide Diahan Southard weighs on in the implications for genealogy researchers who may worry about cousin matches they may miss.

AncestryDNA opt-out

New AncestryDNA Opt-Out Policy

Ancestry.com recently announced an update to their privacy policy. Current and future AncestryDNA users now have the option to opt out of the DNA matching feature.

When you take a DNA test, you receive two different kinds of results from the DNA sample that you submit to your testing company:

  • information about your ancestral origins and
  • a list of your DNA cousins.

Opting out of matching essentially cuts the value of this product in half. You only get the ancestral origin information, and you forfeit access to your list of genetic matches. Opting out doesn’t just mean you can’t see them: it means that they can’t see you either.

AncestryDNA joins 23andMe in providing this option to their clients. You can look at this move as Ancestry’s response to an ever-expanding global audience, many of whom are not genealogists or are reluctant to have their DNA compared to others for a variety of reasons. It is important for them as a company to provide options for their clients to experience their product in a way that works best for them.

What the AncestryDNA Opt-Out Policy May Mean for You

What does this new opt-out option mean for genealogists? Hopefully, not much will change. Ancestry reports that overwhelmingly, people are opting in.

There has been quite a bit of push-back to this announcement, especially from the adoption community. DNA testing has been a tremendous source of information for those seeking out their biological relatives, and many fear that this change will limit access to quality DNA matches. But we will all still be able to do good genetic genealogy work, even as we are each allowed to choose whether to participate in the matching feature. To understand this better, it is important to see this issue from the other side, from the side of a person who might want to opt out. Here are two possible scenarios:

Scenario #1: Susan would really like to explore her heritage. She hasn’t tested before because she didn’t want to see cousin matches for a variety of personal reasons. But now she does test and opts-out. The community hasn’t lost anything because Susan would never have tested in the first place. But after exploring her ethnicity results and noticing membership in a couple of Genetic Communities, she begins to wonder more about her ancestors and decides to opt-in to matching, after all. In this scenario, the Opt-Out policy offers users a way to comfortably give DNA testing a try.

Scenario #2: Ryan heard about AncestryDNA while watching TV last year and ordered a kit. But then last week he heard about the ability to opt out, and went in and changed his account settings. So one day you could see Ryan on your match list, and the next you didn’t. We as a community would certainly see that as a loss. However, consider the circumstances that might have caused Ryan to hit that opt-out button. Perhaps Ryan had no idea how to use the match list, no interest in using it, and found it a bother to get correspondence from people. Perhaps Ryan found something unexpected, like that he wasn’t his father’s child, and he needed some time to deal with it. Maybe Ryan is under pressure from his sister, who didn’t want him to test in the first place (perhaps she knows something he doesn’t about their family tree, or she’s afraid of how any results and revelations might impact her). The short of it is: It doesn’t matter why Ryan opted out, it is his personal right to do so. Just as an adoptee has the right to seek out their heritage, others have the right to keep their family secrets to themselves. This scenario does support the idea that you should review your DNA matches frequently and record information about them in your own master match list, which I talk about in my quick reference guides, Organizing Your DNA Matches and Breaking Down Brick Walls with DNABy promptly recording matching results, you will have them to work with even if the tester decides later on down the road to opt out.

As a genealogy community, we can educate others about the value of the match list, while at the same time cautioning them that unexpected connections may appear. So in everyday conversations, share your own experiences—whatever these may be. Maybe it was affirming for you to see that the dad you grew up knowing is indeed your biological father. Perhaps you can share a story about the power of using a list of fourth cousins to discover information about your third-great-grandfather. Maybe you’ve discovered a new connection—and maybe that connection isn’t yet comfortable or fully explained, but you’re glad to know about it.

Learn More about AncestryDNA Testing

Get the most out of your AncestryDNA testing experience with my quick reference guides! I recommend:

  • A Guide to AncestryDNA How to find your best DNA matches, interpret ethnicity results, link your tree, understand relationship ranges and DNA Circles, and work with Shaky Leaf hints. 
  • Autosomal DNA for the Genealogist. What autosomal test can tell you, who can be tested, how to interpret your ethnicity results, and more.
  • Organizing Your DNA Matches. How to keep track of your matches and apply what you learn from them to your family history.
  • Breaking Down Brick Walls with DNA. What to do next to maximize the power of DNA testing in genealogy. Take your DNA testing experience to the next level and make new discoveries about your ancestors and heritage!

Disclosure: This article contains affiliate links and Genealogy Gems will be compensated if you make a purchase after clicking on these links (at no additional cost to you). Thank you for supporting Genealogy Gems!

Inexpensive DNA Health Reports: Recommended by Your DNA Guide

DNA health reports are becoming a more common option for those who test their DNA for family history. Should you order a DNA health report? Here are the ones Diahan Southard recommends most. Her top pick is inexpensive, available to all testers, and promises confidentiality for your genetic data.

DNA and Health

DNA Health Reports May Have Saved a Life

At Rootstech 2017 I was sitting at my booth answering questions and talking with many of you about your experience with genetic genealogy. A woman came up to the booth and exclaimed, “You saved my son’s life!”

She went on to explain that she had come across my booth at a previous RootsTech and engaged me in a discussion about using this kind of genetic genealogy test to find out more about a person’s health. I explained that while the focus of these genetic genealogy companies is to further our ancestral research, the DNA that they test does contain some health information. In fact, 23andMe used to offer a full health report as part of their service, but the FDA decided they better regulate that sort of thing, and put the kibosh on it. I told her that while 23andMe is slowly edging back into that arena, you can find out some interesting personal health information today, using the results from any of your genetic genealogy testing company.

How to Get DNA Health Reports

1. Download your results. The first step is to download your raw DNA data from wherever you were tested. Just as Lisa Louise Cooke is always encouraging us to be the owners of our own family tree data, we should be the owners of our own genetic data, too. Save a copy of your raw data to your computer. You can find instructions here on my website.

2. Choose a DNA health report provider and upload your DNA. A growing number of companies offer these reports. Within the genealogy industry, 23andMe sells them and recently Family Tree DNA began offering them to existing customers (more on that coming soon).

But the DNA health report provider I recommend the most is Promethease.com. Their service is available to anyone with a DNA sample–you don’t need to test with any specific company. It’s easy and inexpensive: just $5. This report will tell you about various aspects of your health, including your predisposition to certain diseases and ailments, as well as your likely response or sensitivity to certain drugs. And the site promises confidentiality and impartiality, which are crucial in this age. The Privacy statement reassures users, “At no time is your DNA data shared – or sold – to any external party, period. We also do not sell any products like vitamins or supplements.”

Editor’s note: the following paragraph was updated on January 3, 2018: Promethease now offers the option to keep your raw DNA on the site and obtain updated health reports for free at any time. Click here to read more about these options. An email sent to Promethease customers on January 3, 2018 explains, “We added this infrastructure so we could use de-identified stored data to better assess the accuracy of the raw data produced by different companies, platforms and technologies. This will also allow us to provide the best, independent assessment of true vs. false data in future Promethease reports and add new features.” The email also reminded users that updated reports are valuable because the genetic database that fuels the reports “doubles almost every year, and Promethease’s interface is always improving to enable better searching, filtering and exporting options.”

Here’s a screenshot of part of a sample report:

If you would like to read more about Promethease, I suggest reading over the ISOGG wiki page, paying special attention to blog posts by legal and genetic genealogy experts. There is also a Facebook group to ask and answer questions about Promethease.

One more option for DNA health tests that I want to bring to your attention: Livewello. At Livewello you can combine your own personal exploration of your genetics with the tracking of your family’s health. Livewello offers resources about these ailments and predispositions, as well as support groups and chat rooms for you to explore and ask questions. It does have a fee of $19.95 to join, and some of the feature reports do require a monthly subscription fee.

3. Remember that DNA health reports are in their infancy. It is critical to remember that research hasn’t even begun to scratch the surface of the complex way our genetics interact with other factors in order to make our bodies work. So whatever you see on these kinds of reports, take it for what it is: just information, not some kind of crystal ball. If you see something concerning, you may want to consider talking to a genetic counselor.

This woman at my booth found out some interesting information on Promethease, then consulted the professionals already involved in her son’s care, ultimately changing the course of his treatment, and she believes, saved his life.

As more and more people get genetic testing completed, more and more tools are becoming available to track your personal health history. Whatever you decided to do, please remember that your raw data contains your own personal information that does identify you uniquely from anyone else on the planet. While you shouldn’t be afraid to try new tools and explore your personal genomics, it is very important to read the privacy information of each company carefully to be sure you know what you are consenting to when you are uploading your data. Most companies are fastidious about privacy, but many are also involved in research endeavors, including pharmaceuticals, so please be aware before you upload.

As the genealogists in the family, we are the keepers of many important truths and documents, and certainly, that includes our important health information.

Your DNA is Part of Your Story

Watch this free webinar with Your DNA Guide Diahan Southard to learn more about the role your DNA plays in your story. Get inspired, get informed–and get digging into your DNA! Click on the video below to watch it now.

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